Resource: The Center for Transition to Adult Health Care for Youth with Disabilities

The Center for Transition to Adult Health Care for Youth with Disabilities website is an online resource center that can be used by youth and young adults with disabilities between the ages of 12-26 and their families and caregivers to learn about how to move (transition) from pediatric health care to adult health care. Pediatric health care is medical care for children ages birth to age 18.  Once children reach age 18, they are most often referred to an adult healthcare provider. This website provides resources that empower youth with intellectual and developmental disabilities to become self-advocates in the transition process without gaps in health care service. The website provides videos for youth with disabilities to view that help them to understand their healthcare transition. Youth can listen to the real-life story of Hunter, who is a young adult with a disability, and his healthcare transition journey. In the video, Hunter describes the helpful tools he used to navigate a change in his own health care. Two additional videos show a young man with epilepsy named Kobe, who makes a healthcare transition, and Katie, who lives with cerebral palsy and other health issues who transitions from a pediatrician to an adult neurologist (a medical doctor who specializes in treating disorders of the brain and nervous system).  Youth can interact with toolkits, quizzes, and workbooks on these topics.

The website also provides a comprehensive listing of resources for parents and caregivers, clinicians, and direct service providers. Those resources include topics such as changes in insurance and legal rights, interactive videos, toolkits, quick guides, and infographics.

This center is supported by the Administration for Community Living (ACL), U.S. Department of Health and Human Services (HHS) as part of an award.